Thursday, March 6, 2014

Endometriosis Laparoscopic Surgery is Scheduled

I know, I know, I know. It's been ages since I've posted on here. I'm sorry.

I really haven't had much to write about. I've spent most of my time at home or at the dog park with my dogs. But I finally have a reason to write, again.

Endometriosis and Laparoscopic Surgery

It's been over a month since I made my consultation with a gynecologist. We had to wait patiently for my insurance to accept the procedure. Finally, after a quick internet check, the doctor saw the procedure has been approved, and she gave me a call.

I cried tears of joy and relief after I got off the phone. In less than a month I will be cut open- small cuts at least- and we will discover the truth. What is going on inside my crazy body? Is it Endometriosis or something else? Will this end my endless suffering?

The Surgery

The surgery is an outpatient procedure. The doctor will make two incisions: one by my bellybutton and the other on the side so she can move my organs around to get a good look. When (if) they see stuff that shouldn't be there they will remove it. Most likely with a laser. Then they will sew me back up and send me home to recover. And I can't wait.

Tuesday, January 7, 2014

Lupus Makes You Retarded

I don’t offend easily. If you want to get under my skin it’s going to take a lot of work on your part. But today I got pissed at a post on Selena Gomez has confessed she has Lupus, according to multiple celebrity stalking websites, and now she is allegedly back together with Justin Bieber. Who cares? I don’t understand why people care about which celebrity dates which. But The Superficial site was making fun of them getting back together saying “Yup, Lupus makes you retarded.”
Selena Gomez: One of the many to be diagnosed 

"Yup, Lupus Makes You Retarded"

 I know I shouldn’t get upset because some ignorant dolt has access to the internet. I shouldn’t be upset this person is ignorant in the first place. It isn’t their fault. But that simple phrase infuriated me. First of all, using the word "retarded" was probably not a wise choice by the author. It suggest behavior similar to a person with Down Syndrome and that's just offensive, not to the receiver of the "retarded" word, but to the Down Syndrome community. 
Second, Lupus... well, yeah it can make you kind of stupid. It’s called Lupus brain fog. But it doesn't make you date your exes. It makes your thoughts feel like they're pushing through a sea of thick jello. It tends to worsen when stressed or around bright lights. There are a lot of bad things about Lupus and the way it affects the body. Oral sores, sensitivity to the sun, arthritis, skin rashes, it can affect the organs, and it can be deadly. Science has lessened how deadly Lupus is, but two years ago Sasha McHale, daughter of former Celtic player Kevin McHale, died at the young age of 23. It still is a deadly disease. It shouldn't be taken lightly.
It's terrible that Selena Gomez has Lupus. The only possible benefit is that we can add another celebrity voice to our cause if she chooses to use her celebrity status that way. Otherwise she is going to have a long and difficult road ahead of her dealing with medicine and all the symptoms she will have.
Back to the article on, if you can even call it that. The site lives up to its name. It’s superficial all right. I really shouldn’t be upset because this site is devoted to filling all your celebrity stalking desires. But I am. I am upset that they are trivializing Lupus. It's an indirect attack on the struggles every Lupus patient goes through, whether that was their intention or not. If Selena Gomez is on hiatus because of her Lupus then I am happy that she has people around her who are sticking by her and caring for her.

Saturday, December 14, 2013

What Is Lupus: An Answer For Average Joe

What is Lupus?

Systemic Lupus Erythematosus (SLE) is a non-contagious, autoimmune disease that isn't much fun. It means you can't give Lupus to other people. If you'd like to read a more scientific, doctor-ly explanation of Lupus, you can click here. For a simplified version keep reading.
Can you tell who the good and bad guys are?
Neither can my body.

I describe Lupus to my friends like this:

There is a colossal war inside my body. My body has never seen a war like this before. It is my body's version of England's 100 year war and it will probably last for a similar length of time.

Like any battle, there are the good guys (myself) and bad guys (germs and bacteria and anything that wants to take over). The good guys were doing a good job defending the castle and keeping me healthy and alive until Shakespeare started writing the rest of my story. Some of the good guys were ambushed. But it wasn't an ambush by the enemy. This was friendly fire. The good guys are now mistakenly attacking themselves and anything that moves. You would think this would make me nearly invincible. No. Instead, this is giving the bad guys a chance to sneak around my body's defenses and attack me, too.

Unless my body's immune system miraculously realizes the error it is making, my body will be a war I slowly lose. But it's a battle worth fighting.

What Are The Symptoms Of SLE Lupus?

In order to get the diagnosis of Lupus, you need meet 4 of the 11 criteria the American College of Rheumatology has set. Here is that list.

  1. Butterfly rash (A face rash on the cheeks and nose that does not go past laugh lines)
  2. Discoid rash
  3. Sun sensitivity (A rash when you are exposed to UV light)
  4. Oral ulcerations (Sores you reoccuringly get in the mouth or nose. Definitely not fun)
  5. Arthritis (Just means inflammation of joints)
  6. Serositis (Inflammation of the lining of the lung or heart)
  7. Kidney Disorder (this is why they check for protein in your urine)
  8. Neurologic Disorder (seizures or psychosis)
  9. Blood abnormalities
  10. Immunologic disorder (shown in blood tests, like anti-DNA, false positive syphilis tests, etc.)
  11. Positive ANA (Antinuclear Antibodies) blood test

Is Lupus Curable?

At this point in time, there is no cure for Lupus. There are only ways to manage symptoms. Eating healthy, getting exercise, and joining a support group are just a few of the ways you can manage Lupus and all of the challenges it brings. The best person to talk to about managing your Lupus is your doctor. Every Lupus case is different and only you and your doctor know what you need.

My questions for you:
What has been your greatest challenge and how have you learned to deal with it?

Don't forget to follow me on Twitter for more Lupus fun and facts: @ConquerLupus

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