Drum roll please....
What advice do you have to give for caregivers out there- professional or otherwise?
Well, I already did a post like this last time that was focused on family caregivers. This time I will stick with the professional caregivers.
Some Awesome Tips For Professional Caregivers of Patients with Lupus
- Lupus is painful. So making appointments and stuff as pain-free as possible would be lovely. I would be happy if the waiting room seats had better lumbar support. Especially if you're really busy and we have to wait forever for an appointment.
- Don't treat us like we're insane. I've only had this happen to me twice, but I do tend to get weird looks because I know so much about different medicines and body parts and stuff. I swear, I'm not here for the drugs. I'd rather never see you again. No offense. And I'd much prefer to never have to take another pill in my life.
- Be present when dealing with us. You could have a really busy week, but right now the only thing you need to be focused on is me, your boss/patient. I'm paying you for your time, I want your time. This may seem commonplace to you, but to me this is all crazy and strange and is not something I'm very happy to be dealing with for the rest of my life. Respect that and me by engaging in the appointments.
I'm sure there are some more great tips out there, but I've been very blessed when dealing with the professionals in the healthcare world.